Endometriosis · open data
Open intelligence for a disease still waved away.
OpenEndo tracks every clinical trial, paper and grant on endometriosis in the open, so patients, clinicians, researchers and politicians can see the real state of the fight.
- No paywall
- No spin
- Open source
Where things stand
190M
people live with endometriosis
Roughly 10% of women and girls of reproductive age. WHO, 2023.
6.6yr
average wait for a diagnosis
Pooled diagnostic delay across high-income countries.
0.05%
of health research funding
Endometriosis' share of public research spend, despite its prevalence.
1
diagnostic gold standard: surgery
No blood test is in routine clinical use anywhere.
Why this exists
Four facts that should not still be true
01
Pain is still normalised
Symptoms are routinely dismissed as ordinary period pain, by families, by teachers, and by clinicians. That dismissal is the single biggest driver of diagnostic delay.
WHO fact sheet, endometriosis
02
The money does not match the burden
Endometriosis costs European economies tens of billions a year in lost work and care, yet receives a fraction of the research funding given to conditions of similar scale.
EU parliamentary questions on endometriosis funding
03
Care is a postcode lottery
Access to excision surgery, specialist centres and multidisciplinary pain care varies enormously between and within countries. Most patients never see a specialist centre.
ESHRE endometriosis guideline, 2022
04
The data is scattered
Trials, publications, funding calls and policy live in separate registries that nobody aggregates. OpenEndo does the aggregation, in public, for free.
OpenEndo
Live
Research, as it happens
Pulled straight from ClinicalTrials.gov and PubMed each time this page loads.
—
Trials recruiting worldwide
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Trials registered in Denmark
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New papers, last 7 days
Funding
Grants worth chasing
Deadlines that could move the field, if anyone applies.
Horizon Europe — Cluster 1 Health calls
European Commission · €6–12M per project
2026-09-16 · 14 days left
Novo Nordisk Foundation — Women's Health
Novo Nordisk Foundation · Up to DKK 15M
2026-10-01 · 29 days left
NIH R01 — standard cycle
National Institutes of Health · Varies
2026-10-05 · 33 days left
Independent Research Fund Denmark — Project 1
Danmarks Frie Forskningsfond · DKK 1–4.5M
2026-10-27 · 55 days left
Take action
What actually helps
Add data, not opinions
Every dataset, source and script behind this site is public. Fix a number, add a registry, translate a page.
Open the repositoryFind a trial you can join
Recruiting studies are listed with sponsor, phase and country. Bring the record to your own clinician.
Browse recruiting trialsSend the numbers upward
Funding decisions are made by people who have never seen these figures side by side. Send them the dashboard.
Share the dashboard